Thank you for visiting and taking time to see the photos of Meghan and videos of the children with Progeria in the clinical drug trial. We appreciate you supporting this year’s ONEpossible™ campaign by donating and/or passing along the link to this page. ONE at a time, make the hope of a cure for Progeria POSSIBLE!
Meghan has been in the trial since the beginning. In fact, she and Megan from Wisconsin were the first two to take the first clinical drug. Our Meghan is now 11 years old and reads lots of books; and she writes many stories, including a novel. She adores cute little furry animals, and wants to help save the endangered animals of the world. Meghan also likes to play her violin on the sidewalk at Provincetown, and enjoys rockwall climbing and ice skating.
We want her to be able to keep her strength and continue all the activities she likes.
Your support is needed now more than ever! Progeria is a rare, fatal disease of accelerated aging in children, who die of heart disease at an average age of 13 years. The Progeria Research Foundation has identified 90 children worldwide with progeria , this random genetic mutation. And, they're working hard to find the other kids out there. They've doubled the research budget to bring in more high-level experts and get more studies going. And they are planning the biggest, most expensive clinical drug trial yet.They are making so much progress, but need more funds to reach that ultimate goal of a cure.
No amount is too small: Our goal of a cure starts with one –YOU. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate and/or learn about Progeria. Have them pass along the link too! Thank you! Sincerely, Tina and Bill